This is a cerebral palsy website and it is about our experience with our daughter Christabel, she is unable to walk and she uses a wheel chair. She manages to do most of the day to day things on her own.
The cerebral palsy website is presented by the father with the help of the mother and the girl herself. The disability for Christabel started many years ago when she was born on 16 December, 1989.
The girl is a practicing christian, determined and strong willed to live a better life. Christabel's goal is to walk and she is confident that one day she will walk. Christabel's stance is important because belief in god makes one complete or whole in the eyes of the creator. As a family we are all believers and we put our faith in Jesus Christ and that one day our daughter will walk or if she does not walk she will lead good quality and independent life. Presently, she enjoys reasonably good life.
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Christabel's condition is disability adjusted because she is able to do a number of things on her own in spite of her disabilities.
CP is a term for a condition that lead to physical impairment in a child when it is growing up. It is an impairment which is not progressive, which means that the condition does not deteriorate, but other additional impairments may occur. Cure for this condition is not available. As parents with a child with CP we are left with limited options since there is no cure. The main option is to manage or to cope with the condition.
Our child undergoes regular physiotherapy treatment and exercises. We are fortunate in that the child does not require any medications at all.
Christabel has spastic CP which affects the whole body and it is a long term disability. She has uncontrollable shaking that affects the limbs on one side of the body and impairs normal movement.
Over the years she is has been trained and she is able to do some personal and household chores without any assistance. She is learning to stand and she is scoring some successes. Christabel is involved in brain gym, speech therapy, physiotherapy, a stint on horse riding, attending special education school or what we may term as disability education, going to church and participating in church activities.
All these have helped Christabel to get disability adjusted to her condition and fit well in the family and society. The experience gained with managing Christabel's disability has made me confident that I can help other parents or guardians to cope with a child with disabilities. Even persons with disabilities can also learn from my experience.
Providing you with the basic information about cerebral palsy is a good starting point but the site does not stop there. At disability adjusted website we recognize that when suffering from this impairment you want more than just basic level information about the condition.
People also want to know about the experts in the field, the medical institutions that are conducting research, the experience from clinical trials and the organizations and support groups that can help them to better cope with the condition. This site will collaborate with experts and organizations in the field of cerebral palsy.
The information presented here comes from our experience with our daughter with this condition. Although my wife is a registered nurse and midwife, we are not representing ourselves as medical experts providing treatment to children with this condition.
We are providing our experiences with managing a child with this condition and we feel that you may learn from us, on some of our successes and mistakes. You should consult your family doctor or medical advisors to decide what is suitable for your child.
- Disability Adjusted Logo
- Disability Adjusted Logo is our brand-new logo designed for the disability adjusted website and our proposed organisation.
- Disability Adjusted Blog
- The goal is to have the right to independent life for persons with disabilities and make them more active members of society. This blog keeps you posted on disability issues.
- Cerebral Palsy Overview
- This article is on cerebral palsy overview. It gives a bird's view of Cerebral Palsy and I feel people will understand why it happens and what can be done to deal with it.
- Cerebral Palsy Types
- Cerebral Palsy Types are many but there four main ones.
- Cerebral Palsy
- Christabel was born one month before the expected date of delivery. She had severe jaundice soon after birth which led to other complications which led to cerebral palsy.
- Information on Cerebral Palsy
- information on Cerebral Palsy for parents with children with cerebral palsy for a better life.
- Cerebral Palsy Risk Factors
- It is important to know that cerebral palsy risk factors are difficult to detect.
- Cerebral Palsy Symptoms
- This is an article is about cerebral palsy symptoms. There are primary symptoms such as abnormal reflexes and muscle tone and secondary symptoms such as epilepsy and seizures.
- Cerebral Palsy Prevention
- Cerebral Palsy Prevention is possible. Medical science has ruled out that cerebral palsy was not a disease.
- Everyone takes medicine at one time or another including children with cerebral palsy. In this particular paper, I will relate medicine to Cerebral Palsy.
- This is an article about cerebral palsy and malnutrition. Children with cerebral palsy would often experience difficulty in eating.
- Faith Healing
- Faith healing is a belief that God heals people through the power of the Holy Spirit.
- Cerebral Palsy Therapy
- Cerebral Palsy Therapy is usually long-term caring.
- Cerebral Palsy Care
- Cerebral Palsy Care is important, espacially for a girl child.
- Managing Cerebral Palsy
- Managing Cerebral Palsy can be a challenge to parents. It is not easy to live with cerebral palsy, but the first step in dealing with the disorder is to help the family learn how to cope with CP.
- Effects of cerebral palsy
- Overall effects of cerebral palsy on society is not quantified in developing countries so I will give information at household level.
- Cerebral Palsy Assistive Technology
- Cerebral palsy assistive technology are devices for persons with disabilities.
- Cerebral palsy communication
- Cerebral palsy communication is important because self-advocacy for persons with cerebral palsy has been slow in developing.
- Cerebral Palsy in Children
- 1 want to share my story on cerebral palsy in children. This condition can have devastating effects on daily activities on some persons who are affected by it.
- Cerebral Palsy Girl
- Cerebral palsy girl is an interesting subject to discuss, especially when you are dealing with gender and disability.
- Kid with Cerebral Palsy
- Kid with cerebral palsy needs to develop in several different way.
- Cerebral Palsy and Aging
- Cerebral Palsy and Aging, especially when it relates to life expectancy.
- Coping with cerebral palsy
- Coping with cerebral palsy is a challenge in a family.
- Incidence of Cerebral Palsy
- Incidence of cerebral palsy is difficult to find in most developing countries because it this is not captured in the population census or any other surveys.
- Cerebral Palsy Stories
- Cerebral Palsy Stories are accounts of coping with cerebral palsy by parents, especially mothers.
- Definition of Disability
- I would like to give a practical definition of disability which may help you to understand the problems of relating to it.
- Daily life with Cerebral Palsy
- Daily life with cerebral palsy can be a challenge to your well being because of some disabilities which you may have.
- Cerebral palsy is a disability which is long term impairment. The goal of treatment is to help the child to be as independent as possible.
- Developmental Disability
- This is a story about Christabel on her developmental disability. Christabel appeared to be growing physically alright but her developmental milestones between the age 0-5 years were delayed.
- Disability Awareness
- Disability awareness should start within a family. Christabel lives with the parents and the other sister and three brothers.
- Disability Discrimination
- Disability discrimination in simple terms is a situation whereby a person with impairment is not equally treated on accord of his/her condition.
- Disability Education
- Disability education is special learning for people with impairments. Emphasis is on one to one relationship between the teacher and the pupil.
- Disability Services
- Disability Services is provision of facilities and access to public infrastructure for persons with disabilities.
- Disability Rights Movement
- Disability Rights Movement started in the 1960s in the United States of America. The rights movement played an important role in the well being of people with disabilities.
- Some disabilities require use of a wheelchair especially if it affects the legs and one is unable to walk.
- Family Activities
- Family activities include, economic, social, sports and recreatiom.
- Family Support
- Family Support is crucial for a child with CP. Everyday life could pose some challenges on the life of a child with cerebral palsy.
- Teaching Children with Cerebral Palsy
- Teaching children with cerebral palsy is a very challenging and interesting experience for a family.
- Home Schooling
- There are several methods of home schooling epecially for children with disabilities. You are free to select the one which is appropriate for your child.
- There are numerous factors that contribute to risks of a baby getting cerebral palsy. I would like to look at pregnancy in relation to cerebral palsy.
- Maternal Health
- This article is about maternal health and cerebral palsy. Cerebral palsy is the last thing any parent would ever like his or her child to be diagnosed with.
- Development Milestones
- Development Milestones are important and children who depart from them may be classified as persons with developmental disability.
- About Me
- This page is About Me. I am Protasio, a Zambian and I live in Lusaka the capital city of Zambia.
- Contact Me
- This is the place to contact me if you have any comments or suggestions.